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Multidisciplinary care for patients with epidermolysis bullosa from birth to adolescence: experience of one Italian reference center | Italian Journal of Pediatrics | Full Text
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Family tells Washington Post how faith in God's plan helps them battle genetic disease - Coastal Courier
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Community rallies around Cayuga County family whose newborn son has rare, incurable skin condition - syracuse.com
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Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table | The Scottish Sun
Volunteer Ireland - *Volunteer Ireland Awards Spotlight* Liz's daughter Claudia was born 15 years ago with a rare genetic skin disease called Recessive Dystrophic Epidermolysis Bullosa (EB). EB is an incurable skin
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